Quantcast

Sheffield United vs Leeds – Premier League: Live score, lineups and updates

LIVE: Sheffield United vs Leeds - Chris Wilder's Blades on the hunt for first points of the season against free-scoring visitors in Yorkshire derby By...
More

    In Colorado, Fiery Political Novice Aims for a Seat in the House

    LOMA, Colo. — Lauren Boebert, the feisty hard-right Republican House candidate, had just finished regaling a crowd clad in red, white and blue at...

    Kristin Cavallari poses topless in thong bikini bottoms

    Kristin Cavallari poses topless in thong bikini bottoms... after admitting she thought about divorce 'every day' for two years before split By Heidi Parker For...

    ‘War of the Roses’ brawler Brandon Locke-Walker banned from drinking alcohol after Rosehill brawl

    'War of the Roses' brawler seen fighting with up to 30 people at Rosehill Racecourse is banned from drinking for a YEAR but avoids...

    Catharine Phanavong, Expert Cook and Dinner Party Enthusiast, Dies at 39

    This obituary is part of a series about people who have died in the coronavirus pandemic. Read about others here. If Cathy Phanavong knew how...

    Robin Williams’ widow Susan Schneider on the ‘invisible monster’ Lewy body dementia that killed hiim

    Robin Williams’ heartbroken widow Susan reveals her relief after a coroner discovered his Lewy body dementia diagnosis following years of ‘being chased by an invisible monster’ that meant the comedian ‘wasn’t in his right mind’

    • Susan Schneider, 56, spoke of the heartbreak of discovering Robin Williams’ Lewy body dementia diagnosis after his death
    • She described the disease as the ‘invisible monster’ he battled through the last years of his life
    • Schneider added she was ‘relieved’ to learn its name after playing ‘whack a mole’ with his symptoms not knowing the cause 
    • Experts say they are surprised Williams could still walk and talk before his death  
    • The legendary comedian died by suicide in 2014

    The heartbroken widow of actor Robin Williams revealed the relief she felt when he was diagnosed with Lewy body dementia after his death by suicide in 2014. 

    Susan Schneider, 56, spoke to the Today show in an interview broadcast Tuesday in which she discussed the ‘invisible monster’ that chased her husband in the last years of his life, as they played ‘whack a mole’ with his symptoms. 

    The legendary comedian was diagnosed with Parkinson’s disease three months before his death, aged 63, but he was actually suffering from Lewy body dementia. 

    Experts say the disease had such devastating effect on Williams’ brain that they are surprised he could still walk and talk before his death as Schneider now works to promote awareness in his honor. 

    Scroll down for video 

    On Tuesday, the late great Robin Williams’ widow Susan Schneider discussed the ‘invisible monster’ that caused him to take his life by suicide, at age 63, six years ago

    Schneider added she was 'relieved' to learn its name after playing 'whack a mole' with Williams' symptoms not knowing the cause. Pictured, Schneider and Williams

     Schneider added she was ‘relieved’ to learn its name after playing ‘whack a mole’ with Williams’ symptoms not knowing the cause. Pictured, Schneider and Williams

    Brain scan: The legendary comedian was diagnosed with Parkinson's disease three months before his death, but he was actually suffering from Lewy body dementia

    Brain scan: The legendary comedian was diagnosed with Parkinson’s disease three months before his death, but he was actually suffering from Lewy body dementia

    ‘Robin and I knew there was so much more going on. Robin was right when he said to me, “I just want to reboot my brain,”‘ the landscape painter told Today‘s Hoda Kotb. 

    ‘I was called in to sit down to go over the coroner’s report. They sat me and down and said he essentially Robin died of diffused Lewy body dementia. They started to talk about the neurodegeneration. He wasn’t in his right mind.’

    She continued: ‘I was relieved it had a name. Robin and I had gone through this experience together, really being chased by an invisible monster. And it was like whack-a-mole with the symptoms. I left there with a name of the disease, the thing that Robin and I had been searching for.’

    Following Williams’ tragic death, rumors circulated about the cause which Schneider described as ‘challenging’ to read about the ‘greatest love I’ve ever known, my best friend, my partner’. 

    What is Lewy body dementia?

    Lewy body dementia (LBD) is the second most common form of degenerative dementia after Alzheimer’s.

    Unlike Alzheimer’s, LBD affects the brain regions responsible for vision – as opposed to memory.

    That means sufferers may start with memory loss, but over time the more debilitating symptoms will be powerful hallucinations, nightmares and spatial-awareness problems.

     LBD is closely connected to Parkinson’s disease, meaning that many sufferers will develop Parkinson’s as well – as happened to Robin Williams.

    Advertisement

    She now hopes that new documentary ‘Robin’s Wish’ will tell the true story of his final years and the illness that led him to insomnia, paranoia and struggling to grasp reality. 

    Schneider remembered the confusion Williams experienced when instructed by his doctors to sleep in a separate bed from her in order to get some relief from the insomnia that comes with Lewy.

    ‘He said to me, “Does this mean we’re separated?” And that was a really shocking moment,’ the American Brain Foundation vice chair said.

    ‘When your best friend, your partner, your love, you realize that there’s a giant chasm somewhere, and you can’t see where it is. But that’s just not based in reality. That was a hard moment.’

    While Williams continued to work as the couple secretly battled with the symptoms, on set his co-workers were also beginning to notice a change. 

    ‘It was clear to me, it was clear to all of us on that set that something was going on with Robin,’ said ‘Night in the Museum’ director Shawn Levy.

    ‘Robin was struggling to remember lines and to combine the right words with the performance. Robin would call me saying is it usable, is any of this usable. I saw his morale crumble. I saw a guy who wasn’t himself and he thought that was unforgivable.’

    Yet he continued to fight, unwilling to give in to the disease that was taking control of his brain. 

    ‘He wasn’t ready to go. He wasn’t ready to say goodbye to Susan or to life,’ his friend Stanley Wilson said.  

    When he was finally diagnosed after his death, medical experts were amazed as to the extent that it had taken control of his body.  

    The UCSF director of memory and aging, Dr. Bruce Miller, said he was ‘amazed’ that ‘Robin could walk or move at all’ after coming down with the deadly neurodegenerative disorder.

    'He wasn¿t ready to say goodbye to Susan or to life,' his friend Stanley Wilson said of Williams

    ‘He wasn’t ready to say goodbye to Susan or to life,’ his friend Stanley Wilson said of Williams

    'Night in the Museum' director Shawn Levy revealed he had noticed issues on set

    ‘Night in the Museum’ director Shawn Levy revealed he had noticed issues on set

    Started streaming VOD on Tuesday! Robin's health battle is depicted in director Tylor Norwood's critically-acclaimed intimate documentary Robin's Wish

    Started streaming VOD on Tuesday! Robin’s health battle is depicted in director Tylor Norwood’s critically-acclaimed intimate documentary Robin’s Wish

    Schneider- who met the twice-divorced father-of-three at an Apple Store in 2008 before marrying in 2011 – also fondly recalled how he said his life goal was to ‘help people be less afraid.’

    ‘I thought it was beautiful. And I said, “Honey, you’re already doing that. That’s what you do.” And that is pretty great,’ Schneider smiled.

    ‘His humor was like this secret weapon and there were so many times when he would see that someone needed a lift and then he would just inject a little bit of humor in just the right way to make a difference.’ 

    His family and friends now wish to tell his story as they work to promote more conversation on the effects of brain disease. 

    ‘It no longer feels loyal to stay silent about it but maybe more loyal to share without shame without secrecy,’ Levy adds. 

    Robin’s health battle is depicted in director Tylor Norwood’s critically acclaimed intimate documentary ‘Robin’s Wish’, which started streaming VOD on Tuesday.

    LEAVE A REPLY

    Please enter your comment!
    Please enter your name here

    Latest Posts

    Jedward reveal they held their mother’s hand in her final days

    'We always keep her spirit alive': Jedward reveal they held their mother's hand and played Fleetwood Mac in her final days before she lost...

    More than 1,500 people in 500 vehicles participate in a pro-Trump motorcade through Des Moines

    More than 1,500 people in 500 vehicles participate in a pro-Trump motorcade through Des Moines More than 1,500 people participated in pro-Trump motorcade that drove...

    Bournemouth 1-0 Norwich: Arnaut Danjuma strike ensures Cherries stay unbeaten

    Bournemouth 1-0 Norwich: Arnaut Danjuma strike ensures Cherries stay unbeaten as Daniel Farke's side fall to old Premier League relegation rivals Norwich travelled to the...

    Alexie, Pilkey books among most ‘challenged’ of past decade

    NEW YORK (AP) — Toni Morrison is on the list. So are John Green and Harper Lee. And John Steinbeck and Margaret Atwood. All...